Johns Hopkins Update

Hello family, friends and Colin-supporters!

Well, Johns Hopkins is behind us. We saw one doctor - I stress - one doctor - who gave us her (lone), professional opinion on Colin's GI status. The verdict: he likely will never outgrow either his esophageal dysmotolity or gastroparesis. I'll be honest that it was no different than being punched in the gut when you weren't looking as those words passed her lips.

Unfortunately, that wasn't even the worst part. She seemed concerned that we hadn't adequately ruled out cystic fibrosis given Colin's clinical presentation (she wants to re-test his pancreatic enzymes). I would rather not "handle" either of the above scenarios, but the latter is definitely the more devastating of the two. A diagnosis of CF would change everything.

But the more I processed it, I realized two very important things: 1. every doctor's opinion is not gospel - they can be (and are) wrong about diagnoses, and 2. God is the true healer. So, call it my defense mechanism to cope with all of this uncertainty, but until we have definitive answers, I just have to believe all will be okay. I pray this is the case. I pray.

So, in rolls the clouds of doubt over our heads. We've dealt with worse - or at least I keep telling myself. The one thing that remains a constant in all of this is the beauty that is my son. That boy is amazing! What a blessing! He is our sunshine, and quite frankly, keeps us sane! :-) It's amazing watching his continued growth and development. What a great time this is, really! I hope you like the new pics!

Continued thanks for all of your loving support!