Saturday, December 15, 2007

Knee Deep in Medical Tests

I got a call from the hospital yesterday. It was one of Colin's neonatologists. They usually start the conversation immediately by saying everything is okay and not to worry. This call didn't begin that way.
I hate to admit, but I immediately feared the worst. I'll let you, the reader, know that the worst was not realized, but Colin does appear to have another infection brewing (we should find out in the next day or two once the cultures come back). The phone call was gripping though, and I processed only certain words and phrases from the doctor:"...firm abdomen...mucous in his stool...dilated bowel loops...no pneumoptosis". I thought I knew where this was heading: NEC (necrotizing enterocolitis). But the doctor seemed fairly certain that this was not the case given that there was absent pneumoptosis (gas bubbles lining the wall of the bowel loops) and there was no blood in Colin's stools. What it was, however, he did not know. This, along with concern over his increased bilirubin (jaundice) and the fact that his CBC revealed that his white cell counts were up, meant that Colin had to undergo further tests and treatment: blood and urine cultures, start antibiotics (gentamicin and vancomycin), get another KUB (abdominal x-ray), check alpha-1 antitrypsin to rule out biliary atresia (common bile duct between the liver and small intestine is blocked or absent resulting in liver failure), and go NPO (stop feedings).
The ultrasound of the liver and gall bladder was normal. This means that the jaundice was likely caused from his hyperal IV. This is treated with a medication called actigal. The repeated KUB x-ray (done about 10 hours later) showed that the dilated bowel loops decreased (improved) by about 50%. Was this due to the antibiotics or because he wasn't being fed? The doctors weren't sure.
Colin was weighed again yesterday too, and because they had to stop his feedings and had him on a diuretic, he lost weight: from 970 grams to 925 grams. He looked good to us last night, with good color and back to crying to get his way - this boy does NOT like being on his back, and he'll let you know it until you put him on his belly. It quiets him down everytime. Not a good pattern for mom and dad once he comes home! It was good to see his percutaneous line out too. He was working overtime trying to kick out his leg IV, which he managed to do overnight. Thankfully, the nurse caught it right away, took it out, but of course, had to replace it.
We just learned this morning that Colin is going to have to have a lumbar puncture to rule out infection of his cerebrospinal fluid. This tears us up, because this is not an easy procedure to tolerate, and will be his most difficult and uncomfortable procedure to date. A lumbar puncture is basically a long needle that they insert into the lower back area and into the spinal canal to draw out cerebrospinal fluid for testing. This is not a normal needle stick. This one hurts.
It's amazing that this course, adventure, journey or whatever other adjective you can use to describe what Colin and we are going through is truly a moment-by-moment thing. Not even day-to-day. His status can change fast. We're just thankful the wonderful hospital staff is there to monitor his every moment and respond accordingly.

6 comments:

Nikola said...

Guys. It is hard to come up with anything to say right now. It just doesn't seem fair that such a small person should have to go through so many tests. But i guess if this is what it takes to get him home and chub him up then, it's got to be done. I love you guys and just hope that there's some reprieve from this soon, and Colin starts doing a lot better.

Aunt Nikola

Anonymous said...

Colin is a fighter and all of you are showing amazing strength right now. I promise he won't remember the stuff that "hurts" (Rachel had to have the lumbar puncture)so let them test and find out what's wrong so we can get back to warm fuzzy feelings rather than anxious ones. Keep your heads up - love,
Julie

Anonymous said...

Hey Guys...

The army is still behind you, although silent (from the blog) for a day here or there...I PROMISE you that the prayers have not diminished...but grown. Nearly everyone I come into contact with is now aware of Colin, Brian's toughest buddy who lives in Charlotte. And the army of prayers grows. Brian and I again just said a prayer today, just like EVERY TIME before he goes to bed. He repeats after me,"Dear God...Please help Colin...get big...and strong...so he...can go home...with his...Mommy and Daddy...Thank you God...Amen"

That's our prayer and we will keep reminding God of Colin just like the army of friends, family, and friends of your family and friends are doing too. We are praying for Mommy and Daddy too...we're only a phone call away if you need us to talk or to come down to Chlt. We love you all.

Matt (and Lil B.)

Anonymous said...

yes, even though it is in your memory, thankfully colin will never remember any of this pain he goes through. i know that it doesn't make it any easier, especially when you only wish you could climb up on that table and take the pain for him. the thing about love is: someday when he is an adult, he will want to prevent YOU from any pain. he will wish exactly the same thing you do now, if ever put in that situation (God please forbid).

his trials will only make him stronger...he definitely isn't going to be one of those wimpy little sissy boys who are afraid to skin their knee!

always praying for you and for my little fuzzy head!
love, celeste

Anonymous said...

Thank you Bobby and Ania for keeping all of us posted. We know that this is a difficult time for you and wish there was more we could do. One thing we are doing is keeping all three of you in our prayers.

With love,

Gary and Marie Brough

Anonymous said...

I'm praying for Colin's healing and also for strength for you all. I've alerted the large group here praying for you. We ask for a quick resolution of this latest set back so that Colin can progress in his growth and development.

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